SOUTH THOMASTON – Rachel Michelle Long, 3 years, 10 months and 7 days old, passed away peacefully Jan. 15, 2007, at Penobscot Bay Medical Center, Rockport, after living with Cerebro-Oculo-Facio-Skeletal Syndrome (COFS), an extremely rare progressive genetic disorder of which there have been approximately 50 diagnosed cases worldwide. Rachel was born March 8, 2003, in Rockport, the daughter of Michael Rey and Ronda Carrie Nystrom Long. A funeral service will be held 11 a.m. Saturday, Jan. 27, at St. Bernard’s Catholic Church, 150 Broadway, Rockland. The Reverends Mark Reinhardt and Arthur Pechillo will officiate. A reception will be after at the Grispi Parish Center. In lieu of flowers, Rachel’s parents suggest donations in memory of Rachel Long to the Perkins School for the Blind, 175 North Beacon St., Watertown, MA 02472, Arrangements are in the care of Burpee, Carpenter & Hutchins Funeral Home, 110 Limerock St., Rockland. For a complete obituary or to sign an online guest book, please visit